Guestbook
You may use this Guestbook to show your support for the family
and send them greetings by adding an entry below.
Tommy The Duke Morrison
Thu, 06/10/2010 - 1:09am
Windigo
Sun, 05/30/2010 - 1:18pm
Hey Kyle! We have a guy in your area on the Linux Outlaw forums, and he
mentioned what you're going through. I just wanted to stop by and let you
know that you've got our support!
Kyle Hicks
Fri, 05/07/2010 - 5:16pm
Hi my name is Kyle Hicks too. Good luck pal! -Kyle Hicks, Boston, MA
Complete Music and Video
Fri, 04/23/2010 - 3:17pm
Hey Kyle, Looking forward to djing your dance in Garden Plain....take care,
see you soon!
Susan Johnson, Team Kyle
Sat, 01/02/2010 - 12:20pm
An update on Kyle - I felt compelled to write an update after recently
hearing a rumor that has been circulating, speculating that Team Kyle has
stopped fundraising due to Kyle’s death! Nothing could be further from the
truth. Kyle is very much alive, and attending his senior year at Northeast
Magnet High School. He will be 19 in January. He still lives every day in
pain from Recessive Dystrophic Epidermolysis Bullosa (RDEB). He still hopes
for a life-saving bone marrow transplant that would potentially allow his
skin to grow and heal. While the procedure exists and has been performed for
several kids suffering from RDEB at University of Minnesota – Fairview,
finances still prevent Kyle and his family from pursuing this option. Even
though his parents both have health insurance, as of this date, both
insurance companies have denied coverage, citing the fact that a bone marrow
transplant to treat RDEB is still considered “experimental”. Meanwhile, a
14 year old girl, Samantha Sheridan, from Florida, recently underwent a
successful transplant. She is the oldest patient to date to go through this
process. Her story was broadcast on the Discovery Health channel in early
December. Three Wichita area COMPETING car dealers stepped up to the plate to
help Kyle after meeting him at this summer’s Celebrity All Star Triathlon,
a Kyle Hicks benefit. We met with Brandon Steven, Dawson Grimsley and Joe
Self. These 3 men promised to raise the rest of the money we needed to get
Kyle to the $500,000 goal. They told us to call the hospital, and get the
transplant scheduled! My first call was to COTA’s (Children’s Organ
Transplant Association) President. All funds raised have been held in a fund
for Kyle, by COTA. COTA’s President called the hospital to advise the
transplant team that the $500,000 would be in Kyle’s account soon. Then our
world fell apart. We got the devastating news back from the hospital that
because this is a clinical trial, and because there is no funding to support
the trial, the estimated cost of the procedure has gone up to $1.1 million
dollars. To begin Kyle’s transplant, the hospital would require an upfront
deposit of 80% of the potential total (that’s $880,0000!). Kyle’s family
knows the realities of Team Kyle trying to raise this much money in our
current economic times. Therefore, the family has asked that we stop active
fundraising for the time being. We hope that Dr. Wagner’s paper on this
clinical trial will soon be published. Once that happens, Kyle’s parents
can go back to their insurance companies and ask for another round of
appeals. We also know that time is running out. If a child with RDEB manages
to live to their late teens, they succumb to deadly skin cancer generally
while in their 20’s. Team Kyle has been raising money for 18 months now. To
date, we have raised $363,915.31. However, that leaves us a staggering
$517,000 from our “new” goal. If you would like to donate, we are
certainly still accepting tax-deductible donations, made payable to COTA for
Kyle. You can mail checks to Team Kyle, attention: Susan Johnson, 432 W 3rd,
Wichita, KS 67203, or donate directly through Kyle's COTA website.
ForestFlight *Nya!*
Mon, 11/09/2009 - 8:51pm
hey kyle! just wanted to say hi! i REALLY want to help! my dad doesn't have
much money to spare, so i asked my dad if i could donate my allowance and he
said yes! i am SO glad he did! i would give my allowance for a good cause
anytime! please e-mail me at betsy165@bellsouth.net, i'd luv to be friends
with you! ~forestflightnya :)
Frank P. McNamara
Mon, 09/28/2009 - 11:56pm
Kyle, Now that the program has been opened to non sibling matches I hope your
fund raising efforts have provided you with enough to proceed to transplant.
The BMT has proven successful for us. Fallyn is now Day +98 and continues to
improve. Your insurance company should relent on this issue but probably will
not. Bean counters! We had to fight ours too but Dr wagner was able to
prevail for us. His paper should be out soon. I look forward to fpollowing
your progress. Frank P. McNamara father to Fallyn RDEB-HS Contact me through
her website helpfallyn.org and I will verify your contact information and
send you an invitation to her private care pages site. I kept it private
because I do not want the detailed information or the clinical photos I
posted exploited. Their site is not right click protected. You may already
know of Kerick's and Samantha's public careing bridge sites and Hannah's
acureforhannah.com there is a lot of GOOD information on there for those
anticipating in the BMT program.
Comment by Kyle
hey, i got your email. this is kyle hicks. thanks.
hey, i got your email. this is kyle hicks. thanks.
Trisha Harding (Sales Manager for The Broadview Hotel)
Fri, 07/31/2009 - 5:15pm
Kyle....this is a message from TOMMY "THE DUKE" MORRISON ...visit him on his
website: www.TommyTheDukeMorrison.com He wants to do a Fundraiser for YOU
this month August. Tommy was in the Movie ROCKY V..and also his New Video
game has just come out NIGHT FIGHT ROUND 4..... Please have someone make
contact with me: trisha@broadview-hotel.com OR cell: 305-9492.
TODAY!!!!!!!!!!!!!!!!!!!!!!!!...Thanks..Trisha...
Comment by Kyle
Sounds great! i can't wait for the event.
Sounds great! i can't wait for the event.
Susan Johnson, Team Kyle
Fri, 07/24/2009 - 1:30pm
We hope everyone will come out tomorrow to support the "Born To Be Wild" Kyle
Hicks Poker Run at Cambridge Market, 21st & Webb Road! The registration
begins at 9:30 am, the run starts at 10:30 am, and concludes at Louie's at
Cambridge Market. There are a bunch of really cool raffle prizes and silent
auction items. Register early to get a free t-shirt! Our fundraising total is
now at $317,000! Thank you, everyone!
Morgan Shoaff
Thu, 07/02/2009 - 3:39pm
Kyle, Congratulations on reaching the $300,000 mark. What an accomplishment!
It's great to see such support from the community and I can't think of anyone
who deserves it more than you. I know you hear it all the time, but you
really are a true inspiration. Best wishes, Morgan

